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STURGE WEBER UK
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
STURGE WEBER UK
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
STURGE WEBER UK
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..
Dedicated to improving the lives of those affected by Sturge Weber Syndrome through providing strength and support, promoting awareness both publicly and professionally, promoting medical research, creating a supportive community and creating a collaborative approach in the level of care individuals receive throughout their life.
Read more..

Family Weekend 2025 Feedback

If you attended the Family Weekend this year, we could really use your feedback to help us plan and improve the next one. Thanks.

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Sturge Weber UK - Our Mission

Sturge Weber UK inspires to promote research and share knowledge to empower individuals diagnosed with Sturge Weber Syndrome and their families and carers. Giving strength to create a supportive, inclusive and caring community whilst raising both public and professional awareness.

Sturge Weber UK Logo white text on a dark blue square background. It has the words Sturge Weber UK and the tagline Strength Awareness Support written circularly around the outline of 3 face contours.
A mixed group of 19 people, some babies, toddlers, young children, teenagers and adults. Three of them are in wheelchairs, two are being carried by their mothers. They are in a hotel function room and standing on a wooden dance floor. There are two promotional banners either side of the group in the middle.

Families

Welcome to the section of our website which is dedicated to families. We hope that you find this section helpful in finding useful information and support to navigate Sturge Weber Syndrome.

A young lady with long brown hair wearing a blue top and blue trousers is sat in a new wheelchair. There is a table to her left with a plant on it, a man is tanding behind her with a promotional stand and motorised wheelchair to her right.

Make a Difference Grants

Sturge Weber UK are dedicated to supporting our members and empowering them to make a positive impact in their lives. Through our Make a Difference Grant Program,

A young boy with light brown hair is sat on a swing, he is looking up at someone and has a big smile on his face which is predominately covered by a port wine birthmark. he is wearing an orange t shirt

What is Sturge Weber Syndrome?

Sturge Weber syndrome a complexed neurological condition and is estimated to affect around 1 in 20,000 to 1 in 50,000 live births. It affects both males and females equally and does not show a preference for any ethnic or racial group.

A young blonde haired boy is sat on an indoor bench next to a statue of Paddington Bear eating a marmalade sandwich and wearing his traditional blue dufflecoat and red hat. The smiling boy has a port wine birthmark on the left side of his face. He is wearing a brown and white hoodie with camouflage sleeves and blue trousers. nThere are a number of plants on a unit behind the bench.

About Us

Sturge Weber UK was registered as a charity with the Charity Commission on 27th January 1993 after a group of parents who came together in 1990 looking for support and information on this rare neurological disorder with the help of Contact a family.

There are five men standing on the rocky peak of a mountain in Wales. They are all wearing sturdy climbing boots and clothing. Three of them have headlamps on their foreheads, one has a set of walking sticks and they are collectively holding a blue flag with the Sturge Weber Uk logo on it. The sky is overcast and it looks a bit windy.

Events

Welcome to the heart of our community engagement – Sturge Weber UK Events page! Here, we showcase exciting initiatives, gatherings, and campaigns that bring us together to make a positive impact. Join us at these events as we work collectively towards our mission.

There are two people, a young man and a woman standing next to each other both holding a normal sized cheque that has been presented to the charity by the young man. He is wearing a white and black t shirt and the woman is wearing a bright pink top and is holding a microphone.

Fundraising

Do you want to get involved in our charity events or charity fundraising? Raise money for our charity by joining one of our events or even set up your own - it could be the most fun you have all year!

Latest News & Updates

Sturge Weber UK Logo it has the words Sturge Weber UK and www.sturgeweber.org.uk in written circularly around the outline of 3 faces contours. Sturge Weber Uk is registered with the Findraising Regulator
Visit the Sturge Weber Store
Sturge Weber UK Logo it has the words Sturge Weber UK and www.sturgeweber.org.uk in written circularly around the outline of 3 faces contours. Sturge Weber Uk is registered with the Findraising Regulator
Visit the Sturge Weber Store