If you would like to become a member of Sturge Weber UK, there are no charges for those affected, their families, friends, or professionals.

When becoming a member of Sturge Weber UK you will receive an information pack, including a copy of our latest newsletter. If you would like to be added to our mailing list to receive future editions of the newsletter, please e mail to request this. As a member, you will receive up-to-date information and news in our Newsletter. Thank you.

To join, click for the appropriate online membership form:

Adult (for adults affected by Sturge Weber syndrome)
Family (for families with a child affected by Sturge Weber syndrome).
Professional (for medical and care professionals)

Alternately, we can send you a print membership form if you e-mail us at or write to:

348 Pinhoe Road
Exeter EX4 8AF