If you would like to become a member of Sturge Weber UK, there are no charges for those affected, their families, friends, or professionals.

When becoming a member of Sturge Weber UK you will receive an information pack. If you would like to be added to our mailing list to receive our newsletters and hear about our forthcoming events, read family stories and information about services, and useful information, please e mail to request this. As a member, you will receive up-to-date information and news in our Newsletter. Thank you.

To join, click for the appropriate online membership form:

Adult (for adults affected by Sturge Weber syndrome)
Family (for families with a child affected by Sturge Weber syndrome).
Professional (for medical and care professionals)

Alternately, we can send you a print membership form if you e-mail us at or write to:

348 Pinhoe Road
Exeter EX4 8AF