Sturge-Weber Clinic

The Sturge-Weber Clinic

Great Ormond Street Hospital, London

The Sturge-Weber Clinic provides specialist expertise in the assessment and management of children with Sturge-Weber Syndrome and associated medical and developmental problems.  The clinic aims to:

·         Provide information about Sturge-Weber syndrome,

·         Assess your child’s development including language, cognitive and motor skills and functional vision.   

·         Provide recommendations regarding medical management, therapy and/or learning. Advice regarding medical management may include advice about medication, epilepsy surgery or the need for further investigation.

·         Monitor your child’s development over time.  In some situations, a child’s development can fluctuate.

·         Work closely with parents and local services

The clinic’s role is to provide specialist assessment and advice to families and relevant professionals. Your child’s Paediatrician locally remains the co-ordinating specialist for your child’s medical and developmental needs. 

Team Members

Team members will vary depending on the child's need but will generally include a Consultant Paediatric Neurologist, Consultant Neuropsychologist, Specialist Registrar, Speech and Language Therapist and Occupational Therapist.

Referrals

Children are referred either by their local Consultant Paediatric Neurologist, Consultant Community Paediatrician, or by a Consultant from GOSH.  Referrals should be made to the Clinical Co-ordinator at The Wolfson Neurodisability Service at Great Ormond Street Hospital.