Sturge Weber Clinic


The Sturge Weber Clinic provides specialist expertise in the assessment and management of children with Sturge Weber Syndrome and associated medical and developmental problems.  The clinic aims to:
·      Provide information about Sturge Weber syndrome,
·      Assess your child’s development including language, cognitive and motor skills and functional vision.   
·      Provide recommendations regarding medical management, therapy and/or learning. Advice regarding medical management may include advice about medication, epilepsy surgery or the need for further investigation.
·      Monitor your child’s development over time.  In some situations, a child’s development can fluctuate.
·      Work closely with parents and local services

The clinic’s role is to provide specialist assessment and advice to families and relevant professionals. Your child’s Paediatrician locally remains the co-ordinating specialist for your child’s medical and developmental needs.
 

Team Members


Team members will vary depending on the child's need but will generally include a Consultant Paediatric Neurologist, Consultant Neuropsychologist, Specialist Registrar, Speech and Language Therapist and Occupational Therapist.


Referrals


Children are referred either by their local Consultant Paediatric Neurologist, Consultant Community Paediatrician, or by a Consultant from GOSH.  Referrals should be made to the Clinical Co-ordinator at The Wolfson Neurodisability Service at Great Ormond Street Hospital.