Sturge Weber Support Groups in Europe

Sturge - Weber Syndrom
GERMANY

Tel. 07134 - 17629

Fax 07134 - 901993

Web -www.sturge-weber.de

Nederlands Sturge - Weber
HOLLAND

Tel. 046 - 4375836

Web - www.nswv.nl



Useful UK Addresses and Contact Numbers

Contact a Family
209 - 211 City Road
London EC1V 1JN

Web :-www.cafamily.org.uk

Tel 020 7608 8700
Fax 020 7608 8701
Minicom 020 7608 8702

National Helpline 0808 808 3555 Freephone for parents and families
(open 10.00am - 4.00pm Mon - Fri)

The Birthmark Support Group

Web :-www.birthmarksupportgroup.org.uk

SPECS

SPecific Eye ConditionS
Web :- www.eyeconditions.org.uk

Great Ormond Street Hospital, LONDON

Web :- www.ich.bpmf.ac.uk

International Glaucoma Association

Tel. (0207) 737 3265

Fax. (0207) 346 5929

Web :-www.iga.org.uk

Hemi Help Group

Information and Support for Children with Hemiplegia

Telephone Numbers
Helpline 0845 123 2372
Admin 0845 120 3713
Fax. 0845 120 3723

E mail:-postman@hemihelp.org.uk
Web :-www.hemihelp.org.uk

Changing Faces

Tel. (0207) 706 4232

Fax. (0207) 706 4234

E mail : info@changingfaces.co.uk

Web :- www.changingfaces.co.uk

LOOK

National Federation of Families with Visually Impaired Children

Tel. (0121) 428 5038

British Epilepsy Association

Freephone Helpline: 0808 800 5050 (Monday to Thursday 9am to 4.30pm, Friday 9am to 4pm)

Website: www.epilepsy.org.uk

E mail Helpline: helpline@bea.org.uk

Office Address: -

New Anstey House
Gate Way Drive
Yeadon
LEEDS LS19 7XY
Office phone: 0113 210 8800
Fax: 0113 391 0300

N.S.E.

National Society for Epilepsy

Web :-www.epilepsynse.org.uk

Tel. 01494 601300

U K Self Help

Imagine if all the health and social care professionals in this country had easy access to the experience and information of all of the UK Self Help Groups and Support Organisations …

www.ukselfhelp.info


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