Sturge Weber UK Family Weekend Conference 2015
Celebrating the Charity’s 25th Anniversary
After lunch Donna Holmes from Anthony Collins Solicitor’s kindly held a workshop on Wills and Trusts. She was really informative and helpful. Donna answered many questions during the workshop and she stayed for quite a while afterwards to talk to the families on a one to one basis.
Just one of the comments received from one of the children was “this is the best day of my life” and just by the sheer noise of excitement I’m sure you will all agree the Disney Entertainers were a huge success by all
Families who chose to have their photo taken may have already or will be receiving their gift photo soon along with details on how to buy additional photos from the photographer - We are very grateful to Stacey Raven www.staceyravenphotography.co.uk for kindly offering his services that afternoon and providing us with many amazing memories
Sir NitWit (Carl Pettman )
http://www.sirnitwit.com/ It was a hot or cold buffet and once again the hotel excelled themselves with tasty food, plenty for everyone and seconds! Jane Williams again organised a quiz for each table to complete as a group. Very well done to the winning table! People had been very generous in donating prizes for the raffle. Caity Downs and Helena Gardiner kindly offered to draw the raffle and they worked very hard to make themselves heard over the general hubbub! Thank you very much to them for their hard work.
Many of the children went off on the buses to the West Midlands Safari Park although some did remain in the Hotel creche run by Safehands. We arranged for a Safari Ranger for each bus to give a commentary as they travelled around the park.
Jenny Denham opened the 2015 Family Weekend and Conference with the Charity’s AGM. The Chair Jenny Denham and Fundraising Coordinator Lisa Massingham were re-nominated and a new Secretary, Litz Butcher was voted onto the committee by Emma Wright and seconded by John Sutton. Together with the Treasurer, Antonia East, Sturge Weber UK now has four Trustees.
The first Speaker of the morning was Mr Vivek Josan, Consultant Neurosurgeon at Manchester Hospital.
He was followed by Dr Sarah Aylett Consultant Paediatric Neurologist at Great Ormond Street Hospital (GOSH).
After lunch Clinical Nurse Specialists Mark Heathfield and Emma Ninnis from the Sturge Weber Clinic at GOSH gave a presentation.
Finally before tea and pastries Dr Ward gave an overview of the role of an Educational Psychologist.
There was an entertainer for the children in the dining room at 6pm. The entertainer Scott’s Magic was very popular, the children were laughing, shouting and joining in. http://www.scottsmagic.co.uk
The next day dawned sunny and still, perfect for the balloon race. Families could spoil themselves and tuck in to a hearty full English breakfast or simply enjoy croissants and coffee before the balloon race at 10.30.
Thank you to all the families who attended the Weekend. We hope you found the Weekend interesting and fun too! Your support and especially your feedback is highly valued.
A video has been created of the Weekend and can be viewed on our public Face-Book Page https://www.facebook.com/SWUKFanPage