We had never ever heard of the condition untill Olivia was born and after a complicated birth on New Years Day 2008, Olivia entered our world and from the moment we all meet her we knew we had a little fighter on our hands and fight she has done. Olivia has had to deal with an lot in such a short spate of time, in and out of hospital, she has Glucoma in both eyes, right sided weakness, full port wine stain, epilepsy, however she is an inspiation to us all and everyone who knows her will agree. Currently there are over 40 people (and counting) doing the walk up Mount Snowdon on 3rd September, its a 5 mile treck each way, so no pressure there, hey.
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