The next Sturge Weber UK Family Weekend Conference will be held in the Spring of 2018. More details to follow.
Details below of the last Family Weekend Conference held on
22nd, 23rd and 24th October 2016
Sturge Weber UK Family Weekend Conference was held on the 22nd, 23rd and 24th October 2016 at the Hilton Coventry, Paradise Way, Walsgrave Triangle, Coventry CV2 2ST
Saturday Morning will begin with registration and coffee will be from 11am whilst the children will be entertained by Haven Entertainment, which Dawn Macey has kindly arranged. Lunch will be at 12.30pm. After lunch Imogen Newson-Davis, Specialist Clinical Psychologist and other members of the SW Clinic team from GOSH will be running a workshop. Again the children will be entertained by Haven Entertainment in the crèche. There will be time for a swim before the evening meal.
Saturday Afternoon Workshop
Saturday Afternoon Workshop
After lunch there will be a Discussion Group for teenagers and Paula Harman and John Sutton will be holding Discussion Groups for parents/carers to share their experiences, followed by Dr Imogen Newson-Davis, Lead Clinical Psychologist and Joint Clinical Coordinator for the Sturge Weber Clinic at GOSH, who with other members of the team from SW Clinic will be running a workshop. Again the children will be entertained by Haven Entertainment in the crèche. There will be time for a swim before the evening meal.
Saturday Evening will begin at 5.30pm with Mr Whoops http://www.mrwhoops.co.uk/kids-discos/4586349516 entertaining the children until the evening meal at 7pm giving time for families to relax and socialise before the evening meal. He will entertain them again after the evening meal and we will be holding a quiz.
This year we have organized a trip to Conkers and there is a crèche available for those not going on the trip. There are a lot of indoor and outdoor activities for the children to take part in at Conkers. http://www.visitconkers.com/ While the children are having fun, the parents and carers will have the opportunity to listen to the talks below on different aspects of the syndrome.
Dr Samira Syed, Associate Specialist in Paediatrics (Dermatology) at GOSH.
Hilary Kennedy, Clinical Nurse Specialist (Birthmark Unit) at GOSH.
Dr Sophia Eriksson, Consultant Neurologist from National Hospital for Neurology and Neurosurgery. She is now seeing many SW Adults.
Mr John Brookes, Consultant Opthalmologist at GOSH and Moorfields.
Dr Sarah Aylett, Consultant Paediatric Neurologist from GOSH.
Sunday Evening will begin at 5.30pm with Non Stop Kids Entertainment
http://www.nonstopkids.co.uk/#!coventry/cqd3 Dinner will be at 7.00pm and Slightly Unusual http://www.slightlyunusual.co.uk/#!close-up/c11q6 will be performing table magic from 7.30pm until 9.00pm. There will be fun again after dinner for the children.
As the children enjoy the balloon race we will hold one again on the Monday morning. Since it is half term for the majority of the country and it was so popular last year, we have booked a room for the day and organised lunch so families can socialise a little longer. We could hold discussion groups on the Monday morning.
The Weekend is subsidised, the children stay free of charge and the cost for adults is £100 for the whole weekend. If you wish to stay for one night only (Saturday or Sunday) it is £60 per adult.
We look forward to seeing you all again and our new members.
View a memory from last year's Family Weekend Conference