This is a group set up by Antonia East who is the administrator. Her son has Sturge Weber syndrome. The group is for anyone who wishes to have an informal online chat with people who have a connection to Sturge-Weber syndrome.
http://www.facebook.com/home.php?sk=group_161896730499476
You will need a facebook account to access the group. If you are new to this you may find the diagram below helpful.
