Sturge Weber UK Website
We would welcome your ideas on any more pages you feel would be of interest. Perhaps you would like to write your story which we could also include in the newsletter.
You can share experiences and help other families who face problems you may have already faced and solved. Whether this is about considering surgery, laser treatment, needing advice relating to educational statementing or the benefit system, whatever you know that knowledge could be invaluable to new families. We do try to keep you informed about changes that we are made aware of in the Newsletter.