STURGE WEBER UK
STURGE WEBER Foundation UK
Registered Charity Number 1016688
Sturge Weber syndrome is a rare neurological disorder of unknown incidence and origin. It is NOT thought to be hereditary. Sturge Weber is usually indicated by a birthmark(port wine stain) somewhere on the face, usually involving the eye and forehead, also similar blood vessels on the brain, called an angioma. Those who suffer from SW often suffer from epilepsy, hemiplegia (a weakness or stiffness affecting one side of the body, similar in appearance to that of a stroke), glaucoma and learning difficulties. Symptoms usually occur in the child`s first year of life.
Join----Donate----Useful Addresses----Achievemnets to Date---- Benefits---- Tribute to Jill
Council Tax Discount ----Alice - A Special Little Girl----Independent Living Fund
Family Weekend 2000----Family Weekend 2001----Family Weekend 2002
Family Weekend 2003----Family Weekend 2005----Christmas Cards
Membership
Membership is entirely free to professionals, sufferers and their families.
Aims
To provide support and information on differents aspects of the syndrome and to raise both public and professional awareness of the condition.
To promote medical research into the causes and treatment of this syndrome.
A Family Weekend is organised every year, usually in October, when doctors and other professionals talk about relevant topics.
A Newsletter is produced and information leaflets are available.
Telephone :- 01392 464675
Fax :- 01392 464675
E mail :-support@sturgeweber.org.uk
Tel. 07134 - 17629 Fax 07134 - 901993
Web - www.sturge-weber.de
Tel. 046 - 4375836
Web - www.nswv.nl

CONTACT US AT:-
Sturge Weber Support Groups in Europe
Sturge - Weber Syndrom
GERMANYNederlands Sturge - Weber
HOLLAND
We are members of the Carers UK Webring
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